Columbia University Center for Precision Medicine and Genomics

Maya Sabatello, LLB, PhD

Dr. Maya Sabatello is an Associate Professor of Medical Sciences at the Center for Precision Medicine and Genomics, Department of Medicine, and Division of Ethics, Department of Medical Humanities and Ethics, at Columbia University, where she also co-directs the Precision Medicine: Ethics, Politics, and Culture Project. She is a former litigator with trans-disciplinary background and has extensive experience in national and international policymaking relating to human and disability rights.

Dr. Sabatello explores the ethical, social and policy issues relating to biomedical technologies, genomic information and Big Data and the impacts thereof on social structures, marginalized communities, individual rights, and health outcomes. Her NIH-funded mixed-methods and community-based participatory research program focuses on the ramifications of genetic data in non-clinical settings (e.g., schools) for social justice; the psychosocial impact of genomic data and return of genetic results on adolescents and families; issues of trust and inclusion of people with disabilities in precision medicine research; and disability and intersectional biases in AI/ML training datasets. Dr. Sabatello serves as a member of the ASHG’s Professional Practice & Social Implications Committee and the Institutional Review Board (IRB) of NIH’s All of Us Research Program. She was the co-Chair of the Ethics Committee of the International Society of Psychiatric Genetics and she Co-chairs NHGRI’s Community Engagement in Genomics Working Group (CEGWG).

Recent Honors

04/18/2024
Keynote Speaker: Genomic research and people with intellectual disability: Emerging ethical and policy issues
Gatlinburg conference, Kansas City

09/15/2023
Keynote Speaker: Disability, Genomics, and Predictive Medicine: Promise and Challenges
First Ibero-American Congress on Medical Genetics and Genomic Medicine, Colombia

03/2021-present
Co-Chair: NHGRI’s Community Engagement in Genomics Working Group (CEGWG)
The National Advisory Council for Human Genome Research (NACHGR)

09/2017-present
IRB Member: All of Us Research Program
National Institutes of Health (NIH)



Selected Publications

Below is a list of selected publications featuring some of her work. Her full list of published work can be found here.

Fernandez HE, Lipton M, Balderes O, Lin F, Marasa M, Milo Rasouly H, Sabatello M. Pediatric nephrologists' perspectives and clinical practices related to genetic testing and education. Pediatric Nephrology. 9 October 2024.

Russo F, Chatterjee D, DeMaria N, Florido ME, Marasa M, Sabatello M, Wynn J, Milo Rasouly H. Negative results from DNA-based population screening for adult-onset diseases: the recipients' experience. J Community Genet. 7 October 2024.

Weiss R, Rasouly HM, Marasa M, Fernandez H, Lin F, Sabatello M. Nephrologists’ Views on a Workflow for Returning Genetic Results to Research Participants. Kidney international reports. Published online 2024. doi:10.1016/j.ekir.2024.08.026